Haemtrack

Information for patients and parents from the Haemophilia Centre

What is Haemtrack?

Haemtrack is an online system developed by the providers of the National Haemophilia Database. It allows you to record your home treatment, including:

Haemtrack will only collect and record this specific information.

Why do I need to use Haemtrack?

All patients having clotting factor treatment delivered directly to their home must use this system. You have to agree to complete accurate details about you or your child’s home treatment on this database.

Having this information up-to-date is essential.

  1. The information gathered is very helpful for your consultant. It shows how your treatment is working:

    • whether there is a pattern to any bleeding, and

    • whether they need to change your treatment.

  2. Specialist health commissioners also need this information. Clotting factor is a high cost drug in the UK. We have to provide the commissioners with information that helps to plan future care. It also shows how much clotting factor we are using, and compares what we do with other Haemophilia Centres.

Failure to keep records up-to-date could lead to the cancellation of your home delivery. If this happens you would have to collect your treatment from the Haemophilia Centre.

Being considered for any new therapies, drugs, or clinical trials will often be determined by whether Haemtrack is regularly updated. So failure to maintain your records could mean missing great opportunities.

How does Haemtrack work?

You will need a computer, tablet, or smart phone to fill in Haemtrack. It works like a diary. You will have access to a monthly calendar. In this calendar you can add details of your treatment, including the date and time, the product, and the reason for the treatment.

Please register with Haemtrack via their web site.

If you are unable to register with Haemtrack or have difficulties, please contact the Haemophilia Centre.

What if I don't have access to the internet?

If you do not have access to the internet, we can supply you with home treatment forms. These can be completed and returned to us.

Is Haemtrack secure?

Yes, the system is secure. You will be given a unique login and can choose your own password. The only people who can access your data at the Haemophilia Centre are:

What if I have any problems with Haemtrack?

If you have problems, contact the Haemophilia Centre directly and speak to our Data Manager.

Alternatively, you can contact the Haemtrack team directly.