Further help and support for breast cancer patients

Being diagnosed with breast cancer can feel overwhelming, particularly as there is a lot of “information giving” at and soon after diagnosis. Although there is lots of information available about breast cancer, particularly on the internet, it can be misleading or confusing. A good place to start is a reliable charity, such as Breast Cancer Now or Macmillan.  This leaflet summarises the main support services available to our patients.

• Breast Cancer Now
  Telephone: 0808 800 6000

  • Helpline support: 0808 800 6000

  • “Here For You” is a personalised referral service. It supports people affected by breast cancer by offering continued support throughout treatment and beyond.

  • “Someone Like Me” is a service that matches you with a trained volunteer, who has had a similar experience to you.

  • “Younger Women Together” is tailored support for women aged 20 to 45.

  • “Moving Forward Course”. Following completion of your main “hospital-based” treatment, meet face-to-face or online for supportive, open, confidential conversations. The aim of these conversations is to help you cope with the shock of diagnosis, treatment, side effects, worries about breast cancer returning, re-adjusting to the everyday, and moving forward with your life.

  • Forums, information, and booklets in various formats.

• Macmillan Cancer Support
  Helpline: 0808 808 0000 (7 days a week, 8am to 8pm)

  • Cancer Information Nurse Specialists who give advice / support to people living with cancer.

  • Online chat, email, and telephone.

  • Macmillan Telephone Buddies provide support via a weekly call or visit by a trained Macmillan Buddy.

  • Macmillan HOPE Programme is a six session self-management programme. It covers topics including fatigue management, stress management, dealing with setbacks, and challenging unhelpful beliefs.

  • Help with money, cost of living, work, health and well-being, and will writing.

  • Information booklets, videos, and audios, which are also available in other languages.

  • Details on support groups, fundraising events / campaigns, and becoming part of the Macmillan team.

• Macmillan Crossroads Care Kent Volunteer Service
  Telephone: 0345 0956701, select option 3

  Helps people living with cancer and their carers by providing free, practical, emotional, and companionship support.

• East Kent Hospitals’ Cancer Counselling and Support Services for Cancer Patients leaflet

  Contact your Breast Cancer Care Team on 01227 868666 for further information and to discuss being referred.

• Can-Empower

  A resource to help you manage the psychological and emotional challenges of living with cancer.

• Breast surgery support / advice

  Should you undergo breast surgery, a Breast Nurse Specialist will provide you with post-breast surgery supportive literature and aftercare advice. This includes recommended gentle arm / shoulder exercises.

  Please speak to your Breast Cancer Care Team for advice on post-breast surgery bras.

• East Kent Hospitals’ Prostheses Clinic

  A breast prosthesis is an artificial breast shape that sits inside your bra to replace all or part of your breast. Our prostheses clinic is held two to three Mondays a month at Kent and Canterbury Hospital by an experienced breast prostheses fitter. Please contact your Breast Cancer Care Team on 01227 868666 to arrange an appointment.

• Flat Friends
  Email

  Supporting women who have had single or double mastectomy surgery without breast reconstruction.

• Menopausal symptoms and breast cancer

  Some breast cancer treatments, such as chemotherapy and hormone therapy, can cause menopausal symptoms.  For further information and support please speak to your Breast Care Team, or ask for a copy of the Breast Cancer Now booklet Menopausal symptoms and breast cancer.
  
  Menopause and Cancer is another useful resource / support.

• The Harmony Therapy Trust

  A charity who provide up to six free sessions of supportive / complimentary therapies for patients living with and beyond cancer and other long-term health conditions. Contact your Breast Cancer Care Team on 01227 868666 for further information and to discuss being referred.

• Look Good Feel Better
  Telephone: 01372 747500
  Email

  A cancer support charity helping boost the physical and emotional wellbeing of people undergoing cancer treatment.

• Hair loss

  Should you undergo chemotherapy as part of your treatment and wish to talk about wigs, ask your Chemotherapy Unit or Breast Care team for further information.

• One You Kent
  Telephone: 0300 123 1220
  Email

  Healthy changes start with little changes. Whether you want to lose weight, get active, quit smoking, or just feel better about life, One You Kent is here to support YOU.

• Useful Apps

  • Breast Cancer Kent: Patient Journey App

  • Breast Cancer Now: BECCA breast cancer support app

  • CALM App for meditation and sleep.

  • Headspace for meditation and mindfulness.

• Other organisations for information and support

  There are many other organisations / charities that offer further support and information.  For a comprehensive directory of these, please visit the Cancer Care Map web site. Or for further help, please contact your Breast Cancer Care Team on 01227 868666.

If you have any questions or concerns about your health or need advice, please contact us via the Cancer Care Line: 01227 868666.

What do you think of this leaflet?

We welcome feedback, whether positive or negative, as it helps us to improve our care and services.

If you would like to give us feedback about this leaflet, please fill in our short online survey. Either scan the QR code below, or use the web link. We do not record your personal information, unless you provide contact details and would like to talk to us some more.

If you would rather talk to someone instead of filling in a survey, please call the Patient Voice Team.

• Patient Voice Team
  Telephone: 01227 868605
  Email